Some North East CANN Organisations
brainstrust is a brain tumour charity that focuses on support and wellbeing. Little brainstrust is designed for children and teenagers living with a brain tumour diagnosis. Our support specialist for children and families is based in Sussex however has a national role. 500 children a year are diagnosed with a brain tumour, and there are thousands of families living with a brain tumour. Two thirds of children diagnosed with a brain tumour are left with a disability. Families can find communication difficult, and awareness of brain tumours in children is low; this is even though brain tumours now kill more children than any other illness in the UK. We are actively trying to grow clinical links with hospitals and other charities locally and nationally, so that we can collectively work together to provide optimum care to our young patients. Families facing a brain tumour diagnosis of a child feel scared, confused and alone. We know. That’s why we’re working to support families by: Providing unique, honest, coaching-led support by phone (24/7) or email, helping families overcome challenges and find the best possible outcome for their child, and their family Helping families feel less alone by creating communities of peer support, […]
4 Yvery Court Castle Road Cowes Isle of Wight PO31 7QG
Caudwell Children transforms the lives of disabled children across the UK. We act as a safety net for families who are unable to gain the help they need. Providing practical and emotional support to disabled children and their families.
CICC, Caudwell Children. Innovation Way, Keele Science & Innovation Park, Newcastle Under Lyme ST5 5NT
Cerebra is a charity supporting families with children 16 and under with brain conditions. We currently fund research throughout the country into various aspects such as behaviour, sleep, premature births and legal issues. We have a sleep service where our sleep practitioner can provide sleep workshops and presentations and also do 1:1 work with families and create a personalised sleep plan. Our regional officers are able to provide information and advice on all sorts of different things, such as looking for specialist equipment (e.g. trikes/car seats) to where to look for funding to help pay for these. I also signpost a lot to relevant organisations/charities and can help with form filling (grants/DLA). We have a lending library where we loan out books for families (for free) these include books on conditions, sleep, sensory, mindfulness, diet, health and wellbeing etc. We also loan out sensory toys, including a couple of weighted blankets. We have a holiday home families can stay in, and have a grants/wills and trusts voucher scheme (however both of these are full/closed at the minute!) We have a free stress helpline families can call, and we publish various parent guides (including DLA guide, anxiety guide, challenging behaviour factsheet, […]
Changing Faces is the UK’s leading charity for everyone with a mark, scar or condition on their face or body that makes them look different. We offer free emotional, social and counselling support for people who have a visible difference which affects their mental or emotional wellbeing. This include a support and information line, one-to-one social and emotional support sessions, an online community forum, peer support group sessions (18yrs +), and online workshops for children, young people and parents, and a skin camouflage service. Our skin camouflage service is available at locations across England & Scotland. Our free wellbeing services are all delivered via telephone, video session or online, meaning they can be accessed across the UK, wherever you live. On our website you will also find self-help guides and resources for schools.
The Circle, 33 Rockingham Lane Sheffield S1 4FW
Every 30 minutes, a child or young person will acquire a brain injury. This could be the result of an accident, an illness such as meningitis or encephalitis, a poisoning, a stroke or a brain tumour. A brain injury has a devastating and life-long impact on the child and their whole family. Bones can mend and scars can heal but a brain injury stays with you for life and impacts on everything you think, feel and do. The Child Brain Injury Trust is the charity that supports children, young people, their families and professionals and helps them come to terms with what has happened and how to deal with the uncertainty that the future may hold. We are the charity people turn to about childhood acquired brain injury.
Child Brain Injury Trust
Children North East (CNE) is a large North East regional children’s charity, with some of our work extending across England, Wales and Scotland. CNE exists because growing up can be hard. We want all babies, children and young people to be happy and healthy and to grow up feeling: Safe and loved Resilient to the challenges they may face Valued and confident We have a strong children’s rights ethos and believe that real social change is achieved when those who are, or have, experienced issues lead the change. CNE deliver services, support and initiatives that provide a platform for children, young people and families to work through issues, take action and provide them with the tools to reach their full potential. This includes; therapeutic services, mental health support, youth work, domestic abuse support, family support, community-based initiatives, participation and consultation activities and our UK wide Poverty Proofing© initiative. We campaign on issues affecting babies, children and young people, we challenge those in positions of influence at all levels who make decisions affecting the lives of babies, children and young people and we influence social policy and system change to address obstacles preventing babies, children and young people growing up happy […]
89 Denhill Park Newcastle upon Tyne NE15 6QE
Children North East (CNE)
The Children’s Air Ambulance is an inter-hospital transfer service flying babies and children from one hospital to another for specialist care.
Head Office: Blue Skies House Butlers Leap Rugby Warwickshire CV21 3RQ
Children’s Air Ambulance
Communication Matters (CM) is a UK-wide charity committed to supporting people of all ages who find talking difficult because they have little or no clear speech. This can be via paper based communication supports or computer based voice output, we call this AAC (Augmentative and Alternative Communication). Communication can be compromised across many conditions such as Cerebral Palsy, Down Syndrome, Brain Injury, Learning Difficulties and Autism. We have an associate membership of around 400 people. Members come from across the UK and from all the various interests in AAC – personal experience, professional, commercial and research. Members receive copies of our Journal which is published 3 times a year, amongst other benefits. We hold a number of events: most notably our International AAC Conference held over 2.5 days at the University of Leeds each September, as well as UK-wide AAC Information Days (product demonstration days) and Study Days which focus on a particular topic of AAC. We also have many online resources and publications and an AAC Forum. If you are interested in finding out more, please do not hesitate to contact us.
Communication Matters, 3rd Floor, University House, University of Leeds, Leeds, LS2 9JT
Contact a Family is a National Charity supporting families of children with disabilities throughout their journey, from birth – 25 years. We are an information, guidance and advice charity offering help and support across a wide range of issues that families encounter from Health, Education, Finances and Benefits, Family issues, equipment, grants, legal aspects etc. Our team of specialist trained experts that staff our help desk supporting families with queries at times of need ; and we also have parent advisors that work in the regions supporting families with workshops, events, support groups etc.
Contact 209-211 City Road London EC1V 1JN
Contact A Family
Define Fine has been created by a small, committed team of parents and professionals who have lived experience of school attendance difficulties. We are a parent/carer-led organisation set up in response to the growing number of children and young people who experience school attendance difficulties. This is sometimes referred to as ‘school refusal’, or emotionally based school avoidance and may be due to unmet Special Educational Needs & Disabilities including physical or mental illness, either suspected or diagnosed, bullying or issues relating to academic pressure, or even the school environment. We provide peer support, using our tried and tested resources and to help parents advocate for the support their children and young people need to be able to learn and achieve. We hope to build up our growing network of peer supporters, who we can train to use our guides for their own family and ultimately to then help other families experiencing attendance difficulties. Empowering parents to be able to effectively work with professionals, should encourage not only earlier intervention, with much better outcomes, but also reduce the risk and impact of unhelpful, and unnecessary attendance prosecutions and social services safeguarding interventions. It is vital that children, young people and […]
Bluebell House Gumley Leicestershire LE16 7RU
Define Fine – Parent Peer Support for children with School Attendance Difficulties
Family Fund provides grants to families raising disabled and seriously ill children aged 17 and under. Our grants support a family, improve their well-being, increase quality of life and ease many of the pressures they often face. We are a registered charity and the UK’s largest provider of grants to families living on low incomes who are raising disabled or seriously ill children. Our grants bring practical and essential help that is often a lifeline to a family such as washing machines, fridges, bedding, specialist toys and much-need family breaks. With limited funding we try to help as many families as we can. We use our own eligibility criteria to ensure that we only help families in the most need. We will consider helping a family once every 12 months and will usually look at a grant application 12 months from the date of the last grant. Depending on what a family have asked for, we will award a grant in a number of different ways. We work in partnership with a range of providers who help us to make our funding go further and help us to evidence that the grant awarded is used for the purpose it is […]
4 Alpha Court, Monks Cross Drive, York, YO32 9WN
We are Guide Dogs, and we’re here to help people with sight loss live the life they choose. Beyond guide Dogs we offer a range of services which include: Habilitation (independent mobility and life skills training for children and young people with vision impairments) Family support advice, Education advices, Custom eyes books, Buddy dogs, family events and My Time to Play groups for young children aged 0-4. Downloadable forms My Life Skills My Time To Play CustomEyes Books Family Events Finding your way Sensory grants
Park View House, Four Lane Ends, Benton Newcastle NE7 7TZ
Irwin Mitchell Solicitors has the largest, dedicated serious injury and medical negligence department in the UK and is one of the only UK law firms that can offer legal aid for certain birth injury claims with specialist teams based in offices across the country including Newcastle. Our experienced teams will take the time to understand what you and your family are going through, helping you get the answers and compensation you and your child deserve. We also have wider support through our specialist in-house teams including Public law & Human Rights and Court of Protection, as well as support from our dedicated Rehab Support Coordinators and welfare benefits advisors. These teams can assist with Local Authority, Statutory services, funding issues, transport and education issues and planning for the future to ensure your child and family are protected whatever happens. We will always visit you at your home or at a place that works best for you. Sarah Coles Partner and Specialist Medical Negligence solicitor has over 25 years of experience specialising in medical negligence claims and helping families through the process. She is the Regional Head of both Newcastle and Leeds Medical Negligence departments. Sarah has worked with families on […]
8th Floor, Wellbar Central, 36 Gallowgate, Newcastle Upon Tyne, NE1 4TD
Irwin Mitchell Solicitors
Founded in 1980 by a group of parents who came together to establish Thornhill Park School in Sunderland, the North East Autism Society grew out of a desire to provide a better standard of education for autistic children. Having remortgaged their homes to purchase the building, our founders were dedicated to helping autistic young people fulfil their potential – and that commitment remains at the heart of everything we do. Our services include education for children aged 3-19, post-16 education and social/vocational training along with supported and open employment opportunities for adults. Within our care services, we provide year-round residential placements and supported living services. We also work directly with parents and carers, offering family support which includes short breaks, support in the home, evening and weekend activities.
North East Autism Society, 15-16 Lumley Court, Drum Industrial Estate, Chester-le-Street, DH2 1AN
North East Autism Society
RSBC are here to support you and your family if you have a blind or partially sighted child aged 0-25. We offer a range of services including emotional support and practical advice for families, opportunities for children and young people to build confidence and skills through activities, and a specialist further education college – Dorton College. Our Families First service has Family Practitioners based regionally across England and Wales and our Support Advisor is available by phone or email. Activities are held both in London and online. We also work with local partners to offer activities across England and Wales. Our Connecting Families Facebook group is available to join here where you can chat in a safe space with other parents and carers. We have a Family Practitioner dedicated to the North East region who can support the whole family through our Families First service. This support can be provided in-person or remotely. From the moment you receive a diagnosis that your child has sight loss, if there is a change in vision, if your child or family are going through some changes that are difficult to manage or any other time when life just seems a bit tough, get in touch […]
Registered Office: RSBC, Life Without Limits Centre, 10 Lower Thames Street, London, EC3R 6EN
Royal Society for Blind Children
For everyone living with complex disabilities. For everyone who is deafblind. Sense is here to help people communicate and experience the world. We believe that no one, no matter how complex their disabilities, should be isolated, left out, or unable to fulfil their potential. Our experts offer personalised support through our centres, holidays and short breaks, or in people’s own homes. We are here for everyone who needs us, for as long as they need us – providing early intervention for children, helping young people access education, and supporting the transition into adulthood and beyond. In addition to practical support, we also offer information to families, and campaign for the rights of people with complex disabilities to take part in life. We currently provide short breaks services in West Yorkshire for Children with additional needs. We are also providing a summer holiday club for 2 weeks in August.
Supporting anyone affected by Spina Bifida, hydrocephalus and related conditions in England, Wales and Northern Ireland.
42 Park Road Peterborough PE1 2UQ
A disability sport and physical activity charity covering the North East. Providing events, sessions and training to individuals and organisations.
16C Moorland Way, Nelson Industrial Estate, Cramlington, NE23 1WE
Smile Through Sport
The Children and Young Adult service at St Oswald’s is a 6/7 bedded unit currently offering short breaks to 61 children and young adults, aged 0 to 25 years from across the North East.The children and young adults accessing the service have life limiting/threatening conditions and complex health and social care needs. We also provide end of life care to children and young adults using our service and to other children/young adults when death is expected and imminent. These children maybe in-patients at the Great North Children’s Hospital or the Freeman Hospital. We offer an additional choice for a place to die which professionals can offer when planning end of life care. Occasionally we are requested to provide care to a child who has already died to support their family at this difficult time. The service tries to be as flexible as possible to meet the needs of the child or young adult and can respond imaginatively in response to, for example, a family crisis. A specialised team is required to deliver our service; The Children and Young Adult Service at St Oswald’s is nurse led. The Care Team is predominantly registered children’s nurses with a couple of adult registered […]
St Oswald's Hospice Regent Avenue Gosforth Newcastle upon Tyne NE3 1EE
St Oswalds Hospice
SWAN UK is the only dedicated support network for families of children with undiagnosed genetic conditions. Approximately 6,000 children are born in the UK each year with a syndrome without a name – a genetic condition so rare that it is often impossible to diagnose. Without a diagnosis it can be difficult to access basic information and support. We have information leaflets below which are available to download. We are developing leaflets in further languages and these will also be available to download once they are completed. If you can’t find the answer to your question in the resources below or would like to make an enquiry please email: email@example.com. Our animation called ‘Ellie’s story’ explains what it means to have an undiagnosed genetic condition and how SWAN UK helps. Click the link to find out more: bit.ly/elliesstory We offer 24/7 information and support through our online forums for registered members. If you would like to become a SWAN UK member please email: firstname.lastname@example.org or click here to find out more. Don’t forget to check out our news section and join our mailing list too.
Genetic Alliance UK SWAN UK CAN Mezzanine 49-51 East Road London N1 6AH
The Children’s Trust is the UK’s leading charity for children with brain injury and neurodisability. We deliver rehabilitation, education and community services through skilled teams who work with children and young people aged 0-18, and their families. The Children’s Trust Brain Injury Community Service provides specialist goal-orientated neurorehabilitation delivered in the child’s environment, either at home, in school, or a combination of both settings. Delivered by specialists from a range of clinical backgrounds, we work with the child and their family in a non-intensive, consultative way focusing on the needs which result from an acquired brain injury. These may be social, emotional, cognitive, communicative, and behavioural needs. Our ultimate goal is to maximise the child/young person’s participation in their everyday life. In partnership with Leeds Children’s Hospital, we have a clinical specialist based in the hospital who provides information, education, advice and support to families and other professionals. In addition, we also provide long-term support to the child and their family at key transition stages such as starting school, moving to secondary school or college, starting a new job or leaving home to live independently for the first time. In addition, The Children’s Trust Brain Injury Hub […]
Martin Wing F Floor, Leeds General Hospital, Leeds, LS1 3EX
The Children’s Trust
The Children’s Sleep Charity are a national, award-winning charity supporting children with sleep issues. We provide support for families and accredited training for professionals and commercial organisations. Sleep deprivation can have a serious impacton emotional, physical and mental health, many families seeking our support are approaching crisis point. We offer a range of services from working directly with parents to training professionals in the NHS. Our work is based on the latest research and we have a team of experts who input into our training materials and courses. We believe in working in partnership with families and offer a gentle approach to making lasting changes to your child’s sleep patterns.
P5A The Spinney, Balby, Doncaster, South Yorkshire, DN4 9HQ
The Children’s Sleep Charity
Tree of Hope is a children’s charity that supports families to raise vital funds for specialist care, not available through the NHS, for their sick and disabled children. Fundraising under the banner of a registered charity enables families to claim gift aid, receive corporate donations and match funding, as well as providing donor reassurance.
61-63 Camden Road Tunbridge Wells Kent TN1 2QE