16 Sep 2025

Connecting Families Online: ‘Balancing Priorities and Self-Care for Parents and Carers’ · Luma

Name: Connecting Families Online: ‘Balancing Priorities and Self-Care for Parents and Carers’ · Luma
Start: 2025-09-16 19:00:00
End: 2025-09-16 20:00:00
Location: Online

The start of a new academic year can bring up a range of feelings and mixed responses when your child has a visual impairment and additional needs. Families with SEND often experience additional challenges during these transitions.

In this online session, we’ll explore practical tips and strategies to help you build resilience, empathy, and self-esteem while strengthening positive family relationships. We’ll also look at ways to support your child’s big emotions and help you respond with care and compassion.

Join us for a supportive discussion focused on balancing your child’s needs with your own wellbeing.

Book here: https://luma.com/j5kmoc5n

Start:

September 16, 2025 7:00 pm

End:

September 16, 2025 8:00 pm

Fees & Tickets

Free

This event has no entrance fee

Event Venue

Address:

Online

GPS:

Organizer

Royal Society for Blind Children

Some West Yorkshire CANN Organisations

Accessible and inclusive musical opportunities for those with additional needs and disabilities.

N/A

Accessible Inclusive Music (AIM)

Additional Needs Music Music Youth Clubs

Brainbox supports children and young people with Acquired Brain Injuries and other Neurological Conditions, and their families, across the North East. We offer a Family Support Service for practical assistance, a Community Listening Service for positive emotional support, a beneficiary Social Activity Programme for fun experiences. Our projects include Tots To Teens (0-12), Transition Kids (12-17), Open Arms (for marginalised groups) and Clearer Futures (in collaboration with Headway Northumberland) an intergenerational service supporting 17+ and adults through the adult pathway, both vocational and personal. We run a Community Neuro Drop In Hub in Berwick for anyone with an ABI or Neurological Condition, serving the north of the region.

288, Alexandra Road, Ashington, Northumberland NE63 0TS

Brainbox

Additional Needs Advice Family Fun Days Information Mental health and wellbeing support Outreach Training

brainstrust is a brain tumour charity that focuses on support and wellbeing. Little brainstrust is designed for children and teenagers living with a brain tumour diagnosis. Our support specialist for children and families is based in Sussex however has a national role. 500 children a year are diagnosed with a brain tumour, and there are thousands of families living with a brain tumour. Two thirds of children diagnosed with a brain tumour are left with a disability. Families can find communication difficult, and awareness of brain tumours in children is low; this is even though brain tumours now kill more children than any other illness in the UK. We are actively trying to grow clinical links with hospitals and other charities locally and nationally, so that we can collectively work together to provide optimum care to our young patients. Families facing a brain tumour diagnosis of a child feel scared, confused and alone. We know. That’s why we’re working to support families by: Providing unique, honest, coaching-led support by phone (24/7) or email, helping families overcome challenges and find the best possible outcome for their child, and their family Helping families feel less alone by creating communities of peer support, […]

4 Yvery Court Castle Road Cowes Isle of Wight PO31 7QG

brainstrust

Additional Needs Advice Telephone Helpline

We bring disabled people and family members/carers together on line to share experiences and learn together. We offer a wide range of workshops and sessions led by people with lived experience including well being and coping with anxiety, Direct Payments, Advocacy, Social Care and Health. We give disabled people and families the opportunity to amplify their voices and a platform to have honest and well facilitated conversations.

Bringing Us Together, 15 Savile Park Gardens, Halifax, West Yorkshire. HX1 2XL

Bringing Us Together

Additional Needs Advice Family Support Training Webinar Workshops

Calmer Therapy is an organisation based in Stobhill. We provide help and support to families of children with additional needs. We run various sessions from our centre for all different age groups and abilities. At Calmer Therapy we promote an inclusive and enriching environment and believe that everyone deserves a place to be safe, happy and most importantly the chance to be themselves. We also provide advice and support for DLA and PIP forms as well as support with EHCP and school issues. We have recently opened a community café in Lynemouth which aims to provide affordable meals and opportunities for volunteering and employment for post 16 teens with additional needs. Alongside this we also run a food bank, we receive surplus food from supermarkets and distribute to our families.

Stobhill Community Centre Ninth Avenue Morpeth Northumberland NE61 2HS

Calmer Therapy

Additional Needs Advice Employment Support Family Fun Days Holiday Playschemes Playgroup Stay n Play Youth Clubs

Caudwell Children transforms the lives of disabled children across the UK. We act as a safety net for families who are unable to gain the help they need. Providing practical and emotional support to disabled children and their families.

CICC, Caudwell Children. Innovation Way, Keele Science & Innovation Park, Newcastle Under Lyme ST5 5NT

Caudwell Children

Additional Needs Advice Equipment Family Fun Days Grants Short Breaks Sign Posting Therapy Treatment

Cerebra is a charity supporting families with children 16 and under with brain conditions. We currently fund research throughout the country into various aspects such as behaviour, sleep, premature births and legal issues. We have a sleep service where our sleep practitioner can provide sleep workshops and presentations and also do 1:1 work with families and create a personalised sleep plan. Our regional officers are able to provide information and advice on all sorts of different things, such as looking for specialist equipment (e.g. trikes/car seats) to where to look for funding to help pay for these. I also signpost a lot to relevant organisations/charities and can help with form filling (grants/DLA). We have a lending library where we loan out books for families (for free) these include books on conditions, sleep, sensory, mindfulness, diet, health and wellbeing etc. We also loan out sensory toys, including a couple of weighted blankets. We have a holiday home families can stay in, and have a grants/wills and trusts voucher scheme (however both of these are full/closed at the minute!) We have a free stress helpline families can call, and we publish various parent guides (including DLA guide, anxiety guide, challenging behaviour factsheet, […]

Cerebra

Additional Needs Advice Equipment Hire

Every 30 minutes, a child or young person will acquire a brain injury. This could be the result of an accident, an illness such as meningitis or encephalitis, a poisoning, a stroke or a brain tumour.A brain injury has a devastating and life-long impact on the child and their whole family. Bones can mend and scars can heal but a brain injury stays with you for life and impacts on everything you think, feel and do. The Child Brain Injury Trust is the charity that supports children, young people, their families and professionals and helps them come to terms with what has happened and how to deal with the uncertainty that the future may hold. We are the charity people turn to about childhood acquired brain injury. Today the Child Brain Injury Trust is the leading voluntary sector organisation providing emotional and practical support, information and learning opportunities for families and professionals affected by childhood acquired brain injury across the UK. We work across England, Wales, Scotland and Northern Ireland and have a dedicated team of professional staff who give their expertise, commitment and energy every day.

Child Brain Injury Trust

Additional Needs Advice

Children North East (CNE) is a large North East regional children’s charity, with some of our work extending across England, Wales and Scotland. CNE exists because growing up can be hard. We want all babies, children and young people to be happy and healthy and to grow up feeling: Safe and loved Resilient to the challenges they may face Valued and confident We have a strong children’s rights ethos and believe that real social change is achieved when those who are, or have, experienced issues lead the change. CNE deliver services, support and initiatives that provide a platform for children, young people and families to work through issues, take action and provide them with the tools to reach their full potential. This includes; therapeutic services, mental health support, youth work, domestic abuse support, family support, community-based initiatives, participation and consultation activities and our UK wide Poverty Proofing© initiative. We campaign on issues affecting babies, children and young people, we challenge those in positions of influence at all levels who make decisions affecting the lives of babies, children and young people and we influence social policy and system change to address obstacles preventing babies, children and young people growing up happy […]

89 Denhill Park Newcastle upon Tyne NE15 6QE

Children North East (CNE)

Additional Needs Advice Grants Holiday Playschemes Outreach Short Breaks Stay n Play Therapy Training Youth Clubs

The Children’s Air Ambulance is an inter-hospital transfer service flying babies and children from one hospital to another for specialist care.

Head Office: Blue Skies House Butlers Leap Rugby Warwickshire CV21 3RQ

Children’s Air Ambulance

Additional Needs Treatment

Choice Wellbeing Service was established in February 2023, to support the mental health and wellbeing parent carers across the Northeast area. We are fully aware, being parent carers, working within SEND and being mental health practitioners ourselves, where the gaps in Sunderland/South Tyneside are when it comes to the care of the individuals who are caring for children with additional needs. We are aware that quite often individuals who receive a diagnosis of additional need for their children have no idea where to start, what their entitlements are, or if they are even accessing the correct service or provision. This then creates issues for the individuals in the caring role, impacting their mental health in the long term, then unfortunately, possibly impacting the child.

Rainbow Family Hub, Concord, Washington, NE373AE

Choice Wellbeing Service CIC

Additional Needs Advice Therapy Training

Communication Matters (CM) is a UK-wide charity committed to supporting people of all ages who find talking difficult because they have little or no clear speech. This can be via paper based communication supports or computer based voice output, we call this AAC (Augmentative and Alternative Communication). Communication can be compromised across many conditions such as Cerebral Palsy, Down Syndrome, Brain Injury, Learning Difficulties and Autism. We have an associate membership of around 400 people. Members come from across the UK and from all the various interests in AAC – personal experience, professional, commercial and research. Members receive copies of our Journal which is published 3 times a year, amongst other benefits. We hold a number of events: most notably our International AAC Conference held over 2.5 days at the University of Leeds each September, as well as UK-wide AAC Information Days (product demonstration days) and Study Days which focus on a particular topic of AAC. We also have many online resources and publications and an AAC Forum. If you are interested in finding out more, please do not hesitate to contact us.

Communication Matters, 3rd Floor, University House, University of Leeds, Leeds, LS2 9JT

Communication Matters

Additional Needs Advice Speech and Language Therapy Training

Contact a Family is a National Charity supporting families of children with disabilities throughout their journey, from birth – 25 years. We are an information, guidance and advice charity offering help and support across a wide range of issues that families encounter from Health, Education, Finances and Benefits, Family issues, equipment, grants, legal aspects etc. Our team of specialist trained experts that staff our help desk supporting families with queries at times of need ; and we also have parent advisors that work in the regions supporting families with workshops, events, support groups etc.

Contact 209-211 City Road London EC1V 1JN

Contact A Family

Additional Needs Advice Training

Adult Autism Support A needs-led service available to individuals living in Tees Valley who are 16+, Newcastle who are 18+ and Durham who are 16+. Autism Support Service is commissioned by North East and North Cumbria Integrated Care Board (NENC ICB) and delivered by Daisy Chain. The service is designed to be needs-led rather than diagnosis-led, meaning individuals on the waiting list for an autism assessment can also access support.

Daisy Chain, Calf Fallow Farm, Calf Fallow Lane, Norton, Stockton-on-Tees, TS20 1PF.

Daisy Chain Project

Additional Needs Advice

Define Fine has been created by a small, committed team of parents and professionals who have lived experience of school attendance difficulties. We are a parent/carer-led organisation set up in response to the growing number of children and young people who experience school attendance difficulties. This is sometimes referred to as ‘school refusal’, or emotionally based school avoidance and may be due to unmet Special Educational Needs & Disabilities including physical or mental illness, either suspected or diagnosed, bullying or issues relating to academic pressure, or even the school environment. We provide peer support, using our tried and tested resources and to help parents advocate for the support their children and young people need to be able to learn and achieve. We hope to build up our growing network of peer supporters, who we can train to use our guides for their own family and ultimately to then help other families experiencing attendance difficulties. Empowering parents to be able to effectively work with professionals, should encourage not only earlier intervention, with much better outcomes, but also reduce the risk and impact of unhelpful, and unnecessary attendance prosecutions and social services  safeguarding interventions. It is vital that children, young people and […]

Bluebell House Gumley Leicestershire LE16 7RU

Define Fine – Parent Peer Support for children with School Attendance Difficulties

Additional Needs Advice

Family Fund provides grants to families raising disabled and seriously ill children aged 17 and under. Our grants support a family, improve their well-being, increase quality of life and ease many of the pressures they often face. We are a registered charity and the UK’s largest provider of grants to families living on low incomes who are raising disabled or seriously ill children. Our grants bring practical and essential help that is often a lifeline to a family such as washing machines, fridges, bedding, specialist toys and much-need family breaks. With limited funding we try to help as many families as we can. We use our own eligibility criteria to ensure that we only help families in the most need. We will consider helping a family once every 12 months and will usually look at a grant application 12 months from the date of the last grant. Depending on what a family have asked for, we will award a grant in a number of different ways. We work in partnership with a range of providers who help us to make our funding go further and help us to evidence that the grant awarded is used for the purpose it is […]

4 Alpha Court, Monks Cross Drive, York, YO32 9WN

Family Fund

Additional Needs Grants

Go Kids Go have been running wheelchair skills training for young wheelchair users since 1990. The training is designed to enable independence and to help ensure that the young people are able to reach their full potential. We run workshops for manual and powered wheelchair users. Some of the skills we teach on the workshop include back wheel balancing, road safety, manoeuvring skills and emergency evacuation as well as an introduction to wheelchair basketball. We bring extra wheelchairs so that parents, siblings and friends can join in with the activities. We also run disability/wheelchair awareness workshops in mainstream schools for pupils and staff. TV presenter Ade Adepitan MBE, learnt wheelchair skills with us as a young man and is now a patron of Go Kids Go.

90 Wilbert Lane Beverley East Yorkshire HU17 0AL

Go Kids Go

Additional Needs Family Fun Days Mental health and wellbeing support Sport Therapy Training

Enriching the lives of disabled young children, young people and their families. Creating opportunities to inspire disabled children and young people Since 2003, Grace House has supported local disabled children, young people and their families. Our services have provided vital support to these families and have served to enrich their lives. Download PDF to find out more about Room Hire at Grace House here

Bardolph Drive, Sunderland, Tyne and Wear, SR5 2DE

Grace House North East

Additional Needs Advice Employment Support Family Fun Days Holiday Playschemes Information Mental health and wellbeing support Parent Participation Sign Posting Stay n Play Therapy Training Youth Clubs

A small user-led charity which makes life better for children with hydrocephalus (known as water on the brain) and the families who love and care for them. We deliver : Awareness: Every year 1 in 770 babies will be diagnosed with hydrocephalus, yet there is little awareness of the condition and its impact. We are working to change this through targeted awareness raising. Support: We direct families affected by hydrocephalus to organisations that can offer help. We also provide peer-to-peer support, so families feel less alone and can meet others from within their community who are going through the same. Campaigns Through our ‘Get-A-Head’ campaign, we speak up for better awareness of infant head circumference measurement as a tool for early diagnosis of hydrocephalus. Research and training We support research and fund training. This improves understanding of the condition and its management amongst front-line health care professionals, which improves patient care.

Yateley, Hampshire

Harry’s Hydrocephalus Awareness Trust

Additional Needs Advice Family Fun Days Grants Telephone Helpline

Irwin Mitchell Solicitors has the largest, dedicated serious injury and medical negligence department in the UK and is one of the only UK law firms that can offer legal aid for certain birth injury claims with specialist teams based in offices across the country including Newcastle. Our experienced teams will take the time to understand what you and your family are going through, helping you get the answers and compensation you and your child deserve. We also have wider support through our specialist in-house teams including Public law & Human Rights and Court of Protection, as well as support from our dedicated Rehab Support Coordinators and welfare benefits advisors. These teams can assist with Local Authority, Statutory services, funding issues, transport and education issues and planning for the future to ensure your child and family are protected whatever happens. We will always visit you at your home or at a place that works best for you. Sarah Coles Partner and Specialist Medical Negligence solicitor has over 25 years of experience specialising in medical negligence claims and helping families through the process. She is the Regional Head of both Newcastle and Leeds Medical Negligence departments. Sarah has worked with families on […]

8th Floor, Wellbar Central, 36 Gallowgate, Newcastle Upon Tyne, NE1 4TD

Irwin Mitchell Solicitors

Additional Needs Advice

Connecting Families Online: ‘Balancing Priorities and Self-Care for Parents and Carers’ · Luma

Start:

End:

Fees & Tickets

Free

Event Venue

Address:

GPS:

Organizer

Royal Society for Blind Children

Telephone:

Email:

Web:

Some West Yorkshire CANN Organisations

Accessible Inclusive Music (AIM)

Brainbox

brainstrust

Bringing Us Together

Calmer Therapy

Caudwell Children

Cerebra

Child Brain Injury Trust

Children North East (CNE)

Children’s Air Ambulance

Choice Wellbeing Service CIC

Communication Matters

Contact A Family

Daisy Chain Project

Define Fine – Parent Peer Support for children with School Attendance Difficulties

Family Fund

Go Kids Go

Grace House North East

Harry’s Hydrocephalus Awareness Trust

Irwin Mitchell Solicitors

About North East CANN

Our Partners

Contact Us

Important Links