A small user-led charity which makes life better for children with hydrocephalus (known as water on the brain) and the families who love and care for them.
We deliver :
Awareness:
Every year 1 in 770 babies will be diagnosed with hydrocephalus, yet there is little awareness of the condition and its impact. We are working to change this through targeted awareness raising.
Support:
We direct families affected by hydrocephalus to organisations that can offer help. We also provide peer-to-peer support, so families feel less alone and can meet others from within their community who are going through the same.
Campaigns
Through our ‘Get-A-Head’ campaign, we speak up for better awareness of infant head circumference measurement as a tool for early diagnosis of hydrocephalus.
Research and training
We support research and fund training. This improves understanding of the condition and its management amongst front-line health care professionals, which improves patient care.
